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Item Information   Copy / Holding Information     Table of Contents     More Content       More by this author     Buxton, S. Lesley, 1965-     Subjects     Buxton, S. Lesley, 1965-     Buxton Taylor, India.     Parents of terminally ill children -- Canada -- Biography.     Mothers and daughters.     Spinal muscular atrophy -- Patients -- Canada -- Biography.     Nervous system -- Degeneration -- Patients -- Canada -- Biography.     Myoclonus.     Terminally ill children -- Family relationships.     Children -- Death.     Browse Catalog     by author:      Buxton, S. Lesley, 1965-       by title:      One strong girl : su...       by call number:      616.8047092 B991o     Search the Web     Buxton, S. Lesley, 1965-     Buxton, S. Lesley, 1965-     Buxton Taylor, India.     Parents of terminally ill children -- Canada -- Biography.     Mothers and daughters.     Spinal muscular atrophy -- Patients -- Canada -- Biography.     Nervous system -- Degeneration -- Patients -- Canada -- Biography.     Myoclonus.     Terminally ill children -- Family relationships.     Children -- Death.       MARC Display

One strong girl : surviving the unimaginable : a mother's memoir / S. Lesley Buxton. by Buxton, S. Lesley, 1965- Pottersfield Press, 2018. Call #: 616.8047092 B991o Subjects Buxton, S. Lesley, 1965-   Buxton Taylor, India.   Parents of terminally ill children -- Canada -- Biography.   Mothers and daughters.   Spinal muscular atrophy -- Patients -- Canada -- Biography.   Nervous system -- Degeneration -- Patients -- Canada -- Biography.   Myoclonus.   Terminally ill children -- Family relationships.   Children -- Death. ISBN:  9781988286648 (pbk.) Description:  224 p. ; 23 cm. Summary:  One Strong Girl is a mother's vivid account of what it is like to lose her daughter, India, to a rare debilitating disease. The story is a bold description of what it means to deal with deep sorrow and still find balance and beauty in an age steeped in the denial of death. At ten, India climbed the highest on the rope at gymnastics, yet by sixteen was so weak she was unable to even dress herself. The narrative follows the six-year fight for answers from the medical community. Finally, after the genetic testing of India's DNA, it was discovered there were two mutations on her ASAH1 gene, a deadly combination. Today her cells are alive in a research lab at the University of Ottawa. This is a legacy that cuts both ways, a point of pride and pain. One Strong Girl is the story of what it's like to outlive an only child. It describes the intensity of loving a dying child and most importantly, the joy to be found, even amidst the sorrow. Genre:  Biographies. Holds:  0   Copy/Holding information Location Collection Call No. Item type Status   Central Library Adult Nonfiction 616.8047092 B991o Adult books Checked in Add Copy to MyList

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