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The long COVID survival guide : how to take care of yourself and what comes next / edited by Fiona Lowenstein.

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The Experiment, 2022.

COVID-19 (Disease) -- Complications.

COVID-19 (Disease) -- Complications -- Treatment.

COVID-19 (Disease) -- Patients -- Medical care.

COVID-19 (Disease) -- Psychological aspects.

COVID-19 (Disease) -- Diagnosis.

Chronically ill -- Care.

Self-care, Health.

9781615199105 (pbk)

295 p. : ill. ; 23 cm.

Includes bibliographical references and index.

All you need is one person: the birth of a patient community (and what to expect from this book) / Fiona Lowenstein -- It wasn't the beans and rice: fighting biased health care systems with community care / Karla Monterroso -- Standing tall (and sitting right back down): living with Dysautonomia / Heather Hogan -- COVID can't be outpaced: learning radical rest and pacing / Pato Hebert -- With disability, comes rights: navigating the financial impacts of COVID-19 / Letícia Soares, Alison Sbrana, and Karyn Bishof -- The long haul of undeniable need: finding a caregiver / Chimére L. Smith -- The obstacle course: obtaining a diagnosis / Rachel Robles, Dona Kim Murphey, MD, PhD, and David Putrino, PhD -- Down in the well, we will mourn and sing: surviving mental illness / Morgan Stephens -- Am I making any sense?: navigating cognitive dysfunction / Terri L. Wilder, MSW, and Yochai Re'em, MD -- Not the only one: talking about menstrual issues / Monique Jackson -- Gut instincts: finding peer-to-peer support / Padma Priya -- Knowledge Is power: navigating long COVID research / Lisa McCorkell -- Such a powerful love: disabled and chronically ill people and our long fight for justice / JD Davids and Naina Khanna -- Afterword / Akiko Iwasaki, PhD -- Glossary -- Notes -- Acknowledgments -- Resources -- Index -- About the contributors -- About the editor.

"The first patient-to-patient guide for people living with Long COVID -- with expert advice on getting diagnosed, dealing with symptoms, accessing resources and accommodations, and more. For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors -- from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists -- share their stories and insight on topics including: getting diagnosed finding a caregiver confronting medical racism and gaslighting navigating employment issues dealing with fatigue and brain fog caring for your mental health, and more. This vital resource provides the answers and reassurance you need, to take care of yourself and prepare for what comes next."--Publisher.

Lowenstein, Fiona.

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