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Crutcher-Marin, Therese Marie.
Subjects
Huntington's disease -- Patients -- Family relationships.
Huntington's disease -- Genetic aspects.
Browse Catalog
by author:
Crutcher-Marin, Therese Marie.
by title:
Watching their dance...
by call number:
616.851 C957w
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Crutcher-Marin, Therese Marie.
Huntington's disease -- Patients -- Family relationships.
Huntington's disease -- Genetic aspects.
MARC Display
Watching
their
dance
: a
memoir
:
three
sisters
, a
genetic
disease
and
marrying
into
a
family
at
risk
for
Huntington
's / Therese Marie Crutcher-Marin.
by
Crutcher-Marin, Therese Marie.
NorCal Publishing Company, 2017.
Call #:
616.851 C957w
Subjects
Huntington
's
disease
-- Patients --
Family
relationships.
Huntington
's
disease
--
Genetic
aspects.
ISBN:
9780998442204 (pbk.)
Description:
309 pages ; 21 cm.
Summary:
Huntington
's
disease
, considered the cruelest
disease
on our planet, is the Marin
family
secret that the
three
sisters
, Lora, Marcia and Cindy, discover when they visit an aunt they have not seen in years. The story begins with John Marin,
their
brother, and Therese Crutcher, his fiancé, learning that the siblings have a 50/50 chance of inheriting the
disease
which has no therapy or cure. The news shakes Therese to her core, and she questions her engagement to John. After much soul searching, Therese takes the biggest gamble of her life and marries the love of her life knowing the possible consequences of her decision; at least two of the Marin siblings will fall prey to the
disease
and one of them could be John. The challenges a
family
experiences when living at
risk
for a neurodegenerative
disease
which has symptoms similar to ALS, Alzheimers and Parkinson's. The book chronicles the life of John and Therese, over thirty years, as they journey through life shrouded in the uncertainty of
Huntington
's
disease
. How living at
risk
for
Huntington
's impacts
their
life on a daily basis, how
Huntington
's is a factor in every important decision, how it impacts relationships, and addresses the coping skills Therese uses to manage and survive unimaginable stress and anxiety.
Their
lives were filled with unpredictability and pain, and yet full of love, good times, and great joy. Therese discovers acknowledging that her world could change overnight has made her life much richer. She learns to overlook shortcomings and to compromise, to let go of anger, to find joy in the simple things. Therese Crutcher-Marin lives in California.
Genre:
Memoirs.
Holds:
0
Copy/Holding information
Location
Collection
Call No.
Item type
Status
Home Delivery - HN
Adult Nonfiction
616.851 C957w
Adult books
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