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Health Advocacy, Inc : how pharmaceutical funding changed the breast cancer movement / Sharon Batt.

by Batt, Sharon, 1945-

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UBC Press 2017.

362.10971 B335h

Patient advocacy -- Canada.

Breast -- Cancer -- Research -- Canada -- Finance.

Pharmaceutical industry -- Canada.

Medical policy -- Canada.

9780774833844 (hc.)

xii, 383 pages ; 24 cm

Includes bibliographical references (pages 296-350) and index.

The secret war among patient groups -- Canada's health policy landscape -- Health advocacy organizations in Canada -- Beginnings of the breast cancer movement -- Advocacy redefined -- The movement fractures over pharma funding -- Pharma funding as the new norm -- Advocacy groups and the continuing struggle over the pharma-funding question -- The fight for medicine's soul.

Today, most patient groups in Canada are funded by the pharmaceutical industry, raising an important ethical question: Do alliances between patient organizations and corporate sponsors ultimately lead to policies that are counter to the public interest? In this examination of Canada's breast cancer movement from 1990 to 2010, health activist, scholar, and cancer survivor Sharon Batt investigates the relationship between patient advocacy groups and the pharmaceutical industry - and the hidden implications of pharma funding for health policy. She dissects the alliances between the companies that sell pharmaceuticals and the individuals who use them, drawing links between neoliberalism and corporate financing, and the ensuing threat to the public health care system. Batt combines archival analysis, interviews with advocacy and industry representatives, and personal observation to reveal how a reduction in state funding drove patient groups to form partnerships with the private sector. The resulting power imbalance continues to challenge the groups' ability to put patients' interests ahead of those of the industry. Batt's conclusion is unsettling: a once-vibrant movement that encouraged democratic participation in the development of health policy now eerily echoes the demands of the pharmaceutical industry. Sharon Batt is an independent scholar and adjunct professor in the Department of Bioethics at Dalhousie University.

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