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A face for Picasso : coming of age with Crouzon syndrome / Ariel Henley.

by Henley, Ariel, 1992-

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Farrar Straus Giroux, c2021.

617.52092 H514fp

Henley, Ariel, 1992- -- Health.

Craniofacial dysostosis -- Patients -- Biography.

Alternate title:

Face for Picasso : a memoir : Beauty is subjective. Pain is universal

378 pages ; 22 cm.

Includes bibliographical references.

A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome.

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience and the strength it takes to put your life, and yourself, back together time and time again.

Ages 12-18 Farrar Straus Giroux Books for Young Readers.

Grades 10-12 Farrar Straus Giroux Books for Young Readers.

Autobiographies.

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